BROKEN GLASS
By Moira Read
I love
I listen
I fight
I battle
I cope
I hear too many sharp edged words like glass in return
I read
I write
I help
I care
I mentor
I feel too many misunderstandings wrapping around me like
barbed wire
I try
I learn
I accept
I educate
I share
I often upset or anger people with my knowledge
I meet people more than half way
I thank people for listening to me
I understand how hard our life has become & to be part of that too
I am open & honest about our unexpected journey living with autism, anxiety & depression
I carry the mental scars to prove it
I know it has become a burden for others to bare
I feel the thickness of the glass jar around my family growing
I recognise the weight that we bring along with us
I appologise, but I have no easy answers
I am left to sweep up the daily glass splinters
I assert myself infront of professionals
I lay our family open to constant scrunity
I leave part of my heart in each meeting I attend
I shake hands but often feel just more splintered glass on my skin
I bathe our mental scars daily
I piece together our world with love & affection
I care with every breath
I trust, hope & believe we will make it through
I know people will have to come & go from our world
I feel the need for their own smooth glass to comfort themselves
I understand our glass can seem too sharp, sandblasted & too painful to watch & witness
I am making good friends with isolation
I wish for positive changes for females on the autistic spectrum
I will continue to educate myself & others too
I shall be comforted by our own unique polished glass in time
I ask for my heardened heart to feel softer again
I am a seeker of calm, peace & love
Hello again, my latest emotive poem was written early yesterday morning within minutes. The words just came from my mind just like bullets from a gun. Fast & with intent.
That is how it feels when the words begin to arrange themselves in my mind. I am driven, emotionally releasing an experience that I have found difficult to process at the time.
Broken glass is about my feelings during a very intense & emotionally charged meeting, concerning my eldest daughter's medication review with a new Doctor. She has been diagnosed with Asperger Syndrome & is struggles with continual sensory meltdowns.
Where I felt it should & could have been handled in a better way for me & my daughter, sadly the start to our meeting was deeply upsetting for us both. The Doctor's attitude was hostile, aggressive & too distant.
As a special needs Mum to two daughter's I am already used to running on empty. These meetings are stressful enough. A little bit of tender loving care, for parents like myself would make for a much gentler visit. But no, you have to fight, battle, defend yourself, loose your cool, be questioned, quizzed & basically just dragged by the scruff of your neck through an hour of uncomfortable pain.
I have also been part of a few meetings with very some very special medical & educational professionals. They do have brilliant people skills which allow you to feel included & respected.
This meeting was clearly not one of them!
This meeting was clearly not one of them!
Thankfully our meeting had a positive outcome in the end after an hour an a half. A few new solutions for my daughter have been suggested & are being put into place for her to try.
I was exhausted, near to tears, shaken & hurt on leaving the room. It took lots of deep breaths & some time to relax from the after effects of the stress.
Whilst I am so grateful of any help or advice, intervention coming our way I would like to hope that one day professionals will remember when I turn up to see them I am often very vulnerable myself, at the end of my rope & in need of a tiny cup of kindness too.
Thank you for reading my post today.
Until next time, take care.
xx
All images are taken from Pinterest
Oh Moira,
ReplyDeleteThis is so brutal to read. I am glad you have a creative outlet to let all of this out.
You keep on keeping on, Mama.
xo